There is a world that most people never experience.
You don’t sign up for it and until you’ve lived in this reality, you have no idea what it’s like.
The “secret life of the Mom of a child with special needs” was never meant to be a secret.
It’s not that we don’t want to share, it’s not that we are ashamed, I believe it’s a secret because most people couldn’t handle the reality of it.
Let me example. So often when we are uncomfortable and don’t know what to say about a particular situation, we look away. Sometimes we walk the other way and pretend we didn’t see the person, or sometimes we anxiously speak while heading in the opposite direction.
As the Mom of an adult with special needs, I’ve experienced that so often and I have even found myself “without words,” wishing there was an escape door.
But the reality is that the world needs to know about this “secret life.” If we did we would be so much more understanding of the tears, the way our Moms exclude themselves, the reason they seem to never be a part of the group, the tiredness in their eyes.
If you know of a mom in this “different“ world. Ask them to let you in. Find out about their child and do your research so that you can be more understanding. Most importantly, be a friend. Teach your children to just be friends, even when they don’t understand.
It’s a beautiful world that you don’t want to miss. There are miracles everywhere, and there is also sadness but when joy comes it’s like nothing you’ve ever known.